Tuesday, January 22, 2013

A Tale of Two Hope Machines, 1.2

One thing that LIVESTRONG has that Red Treehouse and UCP don’t is its own manifesto. A manifesto is a public declaration. It makes me think, “bold" -- to the point of “in your face.” I also think, “change.” Manifestos are connected with efforts to change the status quo. They're part and parcel of movements of all sorts. 

LIVESTRONG is a movement that was founded on passion, emotional energy, and trust (a blend of hope, faith, and confidence).* It exists to help cancer patients and their families live their days to the fullest, and to help them tackle intensely personal things -- HEADON.

Just an observation: 

In my very limited experience – I've had no exposure, for example, to any of UCP’s affiliates – I can’t say that I feel like UCP and Red Treehouse are trying to build those same sorts of personal and emotional ties between me-and-my-daughter and them. "Life Without Limits" doesn't feel like a movement to me. 

For better or worse, neither of the two organizations is conveying anything so rousing as...

LIVESTRONG Manifesto

We believe in life. 
Your life. 
We believe in living every minute of it with every ounce of your being. 
And that you must not let cancer take control of it. 
We believe in energy: channeled and fierce. 
We believe in focus: getting smart and living strong.
Unity is strength. Knowledge is power. Attitude is everything. 
This is LIVESTRONG

We kick in the moment you're diagnosed. 
We help you accept tears. Acknowledge the rage. 
We believe in your right to live without pain. 
We believe in information. Not pity. 
And in straight, open talk about cancer. 
With husbands, wives and partners. With kids, 
friends and neighbors. And the people you live with, work with, cry and laugh with. 
This is no time to pull punches. 
You're in the fight of your life. 

We're about the hard stuff.
Like finding the nerve to ask for a second opinion. 
And a third, or a fourth, if that's what it takes. 
We're about preventing cancer. Finding it early. Getting smart about clinical trials.
And if it comes to it, being in control of how your life ends. 
It's your life. You will have it your way. 

We're about the practical stuff. 
Planning for surviving.  Banking your sperm. Preserving your fertility. Organizing your finances. Dealing with hospitals, specialists, insurance companies and employers. 
It's knowing your rights. 
It's your life. 
Take no prisoners. 

We're about the fight. 
We're your champion on Capitol Hill. Your advocate with the healthcare system. Your sponsor in research labs. 
And we know the fight never ends. 
Cancer may leave your body, but it never leaves your life. 
This is LIVESTRONG
Founded and inspired by Lance Armstrong, one of the toughest cancer survivors on the planet. 

*with a nod to David K. Hurst

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