My daughter has what could be described as a functional and
developmental disorder (cerebral palsy) and I’m inclined to believe
from a purely medical perspective she'd be well served –
maybe even best served -- by having a pediatric physiatrist in her corner. My confidence about that, however, is shaky.
How come? Well, for one, nobody seems to be making a strong case that that's what I should believe.
Try Google searching for an authoritative, if not definitive, answer to the question Should
my child be under the care of a physiatrist? and you're not likely to find one. Even when you go directly to the sites of those organizations presumably most "in the know," there's nothing straightforward. Nothing from United Cerebral Palsy (UCP). Nothing from American Academy of Physical Medicine and Rehabilitation (AAPMR = the national medical society representing
more than 8,000 physicians specializing in the field of physical
medicine and rehabilitation, i.e., physiatry). Nothing from American Academy for Cerebral Palsy and Developmental Medicine (AACPDM).
I could take a stab at some of the possible reasons why: Physiatry's identity is still evolving. Where there’s CP there's never a simple answer...
In this case, though, could it have more to do with the fact that there's some sort of communication---public education---marketing gap? That it's a professionally accepted best practice to have a physiatrist on the CP case, but that parents like me aren't being told? Is there a need and opportunity to get the word out? Should one or more of the aforementioned
associations exert efforts to do so?
Just asking.
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